




Creutzfeldt-Jakob Disease is rare. It's also fatal. Around 1 in every 5,000 people in the UK are affected. There is no cure and no treatment. Most cases happen for no known reason, and by the time symptoms appear, the disease moves fast. Most patients die within a year of diagnosis. For some, it's a matter of weeks.
This isn't an abstract cause for us. Leckie is a respected colleague and friend at Goodrich Consulting LLP. He's the reason the MAG27 Euro Rally exists. Every mile driven, every checkpoint completed and every pound raised is for him. Twelve teams are taking on this rally because one person we know is living with what CJD does.
The Cure CJD Campaign was set up in 2016 by a group of people personally affected by the disease. It's a fund within UCLH Charity, run to support researchers and doctors at the MRC Prion Unit at UCL and the NHS National Prion Clinic. Their aim is simple: fund the research that gets the world closer to a treatment, and raise awareness of a disease most people have never heard of until it touches someone they know.
There is currently no approved treatment for CJD anywhere in the world. But researchers at the MRC Prion Unit at UCL have developed an experimental antibody called PRN100, designed to stop prion proteins malfunctioning in the brain. A small group of patients received it in 2018 and 2019, and the early results were promising enough to be published in The Lancet Neurology in 2022. It's the closest the world has come to treating CJD. Funding is what takes it further.
That's our target for The Cure CJD Campaign. Every penny raised supports the MRC Prion Unit's research directly. Twelve teams, five countries, five days. Every entry, every challenge and every mile brings that number closer.